International collaborations

RECAP Preterm

logo RECAP
The RECAP-Preterm project, funded by the European Union Horizon 2020 research and innovation program, has as its objective to improve the health, development, and quality of life of children and adults born very preterm (before 32 weeks of gestational age) or with a very low birth weight (less than 1500 g). This project set up a platform enabling the assembly, harmonization, and use of data from 20 European cohort studies of children and adults born very preterm in 13 European countries. In the longer term, our ambition is to enrich this platform with data from cohorts in other countries, outside Europe.


What research topics will this study consider?

One of the priority objectives of this project is to understand better the factors that can influence the health and development of children born preterm. These diverse factors cover:

  • the different types of medical management (which we have talked to you about in preceding newsletters): our objective is to pinpoint them more effectively to be able to apply them more widely throughout Europe,
  • the different educational policies implemented, and
  • families' social environment. The cohorts of adults born preterm will also enable us to assess their capacity for integration and their well-being. Finally, we consider it important to assess the impact of these very preterm births on the health and well-being of the parents.


What does this new collaboration mean for you?

This new project does not involve any collection of supplementary data about your children. No exchanges of individual data between countries is planned. Each country is analyzing its own data. These are global results (percentages and means) that are first pooled and then reanalyzed in relation to the topics described above.

We will keep you regularly informed about the research projects conducted and their results. We remind you that if you no longer want your data to be used for these studies, you can tell us so at any time by sending us an email.


Participating countries and cohorts


To learn more:


The 3E project

The 3E project, that is, the EPICure-EPIPAGE-EXPRESS comparative research collaboration, is the first collaborative project to be conducted as part of the RECAP Preterm project.

Its objective is to study the effect of different types of perinatal management of extremely preterm infants (born between 22 and 26 weeks of gestation) on their survival and development at the ages of 2 and 5 years. The information collected in Epipage 2 is currently being analyzed with the data from two other cohorts, similar to Epipage but conducted in countries with different practices in the management of extremely preterm births: the EPICure (United Kingdom) cohort ( and the EXPRESS cohort (Sweden) (

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